| The aim of the Association is to provide support, but more importantly, to enable full adult living for this relatively new medical community which is growing by about 3,000 each year. They have survived as a result of advances in surgery and medicine for congenital heart disease. However, their disability leads to difficulties and disadvantage; they have problems securing the essential things in life such as employment, insurance, mortgages. Currently it is estimated that there are over 100,000 GUCH patients in the UK. Our Aims - To encourage GUCH patients to help and support each other by sharing knowledge and experience.
- To provide information and advice to improve the management of problems - general and medical.
- To provide support and encouragement for all GUCHs, their partners and families.
- To work with health care professionals to raise awareness of GUCH patients and their needs within health services.
- To organise events and provide opportunities for GUCHs to meet socially.
- To promote awareness and educate social care professionals, employers, insurers and the general public about the existence and the needs of Grown Up Congenital Heart patients.
E-mail: admin@guch.org.uk Website: http://www.guch.org.uk |  |
